Josh's surgeon just came in about 15mins ago. He said that everything went well. He lost some blood but that is common for this type of surgery. He is in recovery currently. Should be back up here to his room within the next 1/2 hr or so. Thank you for all of the prayers. Pray that recovery will be quick and he'll be able to go home sooner rather then later!

Josh was feeling good this AM when I talked to him he said he was going to talk witht his doc when he came in and see if he could go home and just take the laxatives there. Over the last few months Josh will be sleeping and just wake all of the sudden and jerk real hard. Well today when the doctor came in the opening of the door startled him he jerked. Well just that movement broke his left humerous. Long story short it was a clean break and the bone is thin which means the cancer is in the bone and weakened it cause the break. So he is currently in surgery. They are doing the same proceedure they did on his right femur. Rod and pins to stablize the bone. God is in control. And I know he is with the doctors doing the surgery. When it rains, it pours. But that's ok because we have God to give it to and we dont' have to "deal" with it!

UGH!

So because we increased Josh's pain meds he's been fighting constipation which is to be expected. We though we had it under control and then last night he started having sever abdominal pain. The feeling of needing to have a BM. His pain couldn't be controled and the stool softeners and laxative were no longer working. SO. I called the boys in blue about 12:00 last night and they went ahead and brought him to the hospital. We have now been here for about 7hrs. Blood work check, CT check, X-ray check, UA check. Kidney stone! Ouch. Been there done that. Josh remembers hearing this from his oncologist, but the CT showed that the tumor is in the bone of his pelvis which we new that but now it is showing there are fractures in the bones of the pelvis and lower spine. That is all the info we have at this time. Josh is going to be admitted for pain control and when that happens we will learn more about what is going to happen. So please continue to pray for Josh. That he will be pain free and able to sleep. Pray that the fractures that showed up on the CT was a mistake and they are not there, and that the stone will be able to pass easily. We don't have results back yet from the x-ray so pray that is doesn't show an obstruction of the colon/intestines. Just pray for ultimate healing! We've had ENOUGH of this and are ready to be "normal"(whatever that is ) :) Also keep the doctors in your prayers also, that they will have wisdom and be able to diagnose this situation

I was holding Joshy up so he wouldn't roll off of the table. Ya'd think they would have cut me out.


Lovin the dirty fet. Ha ha.

Lead me to the cross where your loved poured out....

That is the song that is playing on KLOVE right now. I love it. For all of you that still read our blog; Thank YOU for your prayers. I know I have not kept up very well with keeping everyone informed about what is going on. There hasn't been any big changes....

Last week we all went to the Josephine co. fair. Josh has been going every year since he was very little with his grandmother and didn't want to miss this year. So we went over on Wednesday. Saw Roy Clark...interesting man. Very talented and funny guy but he is getting there in age. :) We had a very nice time. For the first time since all of our crazy happenings we spent the night in a hotel. It was the first time Josh has slept in a "real" bed in 8mos. Needless to say he (we) didn't sleep that night. It was nice being able to roll over and he was there but it was just too uncomfortable for Josh. The hardest part was not have a trapeze bar above the bed for him to move himself around with. All in all we made it happen. Andrew stayed with us, he slept on the floor...started out by the T.V. in his sleeping bag and ended up over by the bathroom. It was cute. He asked if it was our new house. Huh, uh, huh huh...... or not. :)

On Thursday Josh had an appointment with his oncologist over there in Medford (that's why we spent the night). She wants him to stay on the Sutent for now. She said that it's still showing progress and until it stops he will keep taking it. I was pleased with that. Like I've said before, when he is on the chemo he feels "alive" feels good. He has been off of it for almost two weeks now. The time hasn't been great as far as pain and discomfort. We will be happy when Saturday (tomorrow) comes and he start his next round of the Sutent.

Andrew has been in Eugene all week. Spending time with Papa and Nana, Uncle Gregory and Auntie Jenn. And whoever else wants him :) He is making the rounds. Spoiled! I am jealous OK! He thinks he is Andrew Charles Buster... I wonder who put that idea into his head DAD! Or was it Uncle ROBB? It sounds like he is having a great time. He starts pre-school next week. He has been going all summer but now it's school time and not just play time. We are going to keep the same scheduled he has had. For now. There is a song that Josh and I made up for Andrew, it's starts off "have you seen the most beautiful boy in the world?" Every time Josh or I start to sing it Andrew smiles from ear to ear. He started singing "have you seen the most beautiful daddy in the world" It's kind of become they're song. It's oh so very sweet. Once I can video them singing I'll post it. But every time Andrew sees I have the camera he stops and says cheese and then just wants me to take pictures. He doesn't understand I am making a "movie" of him. Silly boy.

Mr Joshuah is going to be 9 months on the 5th. I can't believe how fast time goes. He is now holding his bottle on his own. Sitting up mostly by himself. That is until he tries to look at something that is to the side and then he falls over. He is now getting up on all fours and rocking back and forth. It is so close to crawling! Over this time his brother has been gone he has become very verbal. He has found his voice! So much fun watching him grow. He is starting to wave. We will wave at him and then very slowly he will look at us, look at his hand and move his wrist around. The parade wave. :)

I have been keeping busy. Surprise. Bet you weren't expecting that one were ya? I am still at the clinic Friday afternoon's and Saturday mornings. It's a nice lil break from home life. However it is the end of the summer and everyone is just realizing that kids need physicals for school so now we are cramming them in wherever possible. It's all good though. I have made the commitment to keep my Mary Kay business going. I really enjoy the whole MK business. Meeting new people, parties, girl time, making women feel good about themselves. The opportunity is so great. I can work when I want. Have as many or few classes I want to hold. No one to tell me I HAVE to be somewhere. And I can go as far up in the business as I want. My long term goal right now is to earn the use of my first Mary Kay car by my 4th MK anniversary in June. Fun stuff I tell ya.

Things change everyday. I am excited to see what God has in store for us. He is our comfort. He has healing in mind I am sure. We just don't know what he is waiting for. All in God's timing. Right? We are so blessed to have one another, to have our family together almost 9 months later. We have a roof over our heads and food in our tummy's. It's a lot more then what some people have. I wish every was as blessed as I am! All glory to him!

It has been a crazy couple of weeks. Josh had his CT done and in the doctors words it shows that most of the tumors are stableized but some are growing. The tumors on his spine, in his abdomin and the linings of the lungs. Not horrible news but not the greatest. He is on round three of the Sutent (chemo). Bad days and good. Yesterday we had an open house (nobody showed) and therefore we couldn't be here for a couple of hours. We wend out to lunch with papa Chuck and gramma Eunice. It was nice to get out of the house. Today Josh got to sleep in a lil and we woke wanting Denny's for breakfast/lunch so two days in a row we all got out of the house for awhile. He now sleeps. :)
Andrew came down with a cold a couple of weeks ago. Gave it to me and one of us gave it to Joshy. Andrew got over it pretty quick. Still has a bit of a cough. I went to the doc twice first time everything was fine and the second time I was diagnosed with HIB (look it up) :) Got on a antibiotic and am feeling much better. Joshy however has been on two different abx and today for the first time is actually starting to act like himeself again. His cough sounds HORRIBLE and he dosn't sleep very well at night. I hope that this week is the start of health and happy boys and LOTS of sleep!!!
Josh has an appt with Dr. Kohler in Medford on the 20th pray that we will find the car we want before then!

We praise him in the storm!

Here are some misc pictures. I realized it's been awhile since they were updated! Also here is the link to the pics that I just had done of the boys last weekend if you wanna see the proofs. Enjoy!

http://portraits.pictureme.com/PR3/orderpage.aspx?pi=YCO8001I000000&po=0&c=3DJ96V




I love piggy toes!!! See the silly middle toe on his right foot. he he

I love this man!

He he. Papa, Joshua, Cousins Sydney, Shanna and Calvin.

All of the kiddos sleepin in the tent. Even Andrew stayed there ALL night.

No comment

Joshuah and nana. He had gone to bed at 8:00 and then awoke to all of the noise. He wasn't sure what to think about everything.

All the kids were so excited to do fireworks. Here the are watching the famose black ugly snakes. whoo hoo

Joshy enjoying being outside with everyone.

He just got a bath and then decided he was going to sit in my flower beds and make a dirt hole. Nice Andrew.

Shanna putting the tent up, with the "help" of the lil ones.

4th of July!! Dad, Shelly, Roy and Josh (duh) :)

Yes I let my child fall asleep in the bathtub. Yes he was supervised!

Andrews first skate board! One his of his surprises for getting 3 stars on the calendar for not wetting in his pull up!

Andrew thinks that whenever I turn on the sprinkler is for him to play in.

Father's day. Breakfast in bed with daddy. First off peanutbutter cereal.

First day of "school" yes in the summer!

Ok so because we didn't see Dr. Kohler in Medford yesterday I was able to talk with her on the phone for a little bit to go over all that was suppose to be discused.

She said that Josh's lab work looks good. His cell turnover rate? was good and that was encouraging to her. She said that areas of his labs that she had been watching because they were out of range is starting to look a lot better. AMEN so does that mean the chemo is working and the cancer is going away? We don't know and she didn't say that. I don't blame her. CYOA. Dr. Kohler said that Josh counld start working on standing with his leg braces if he wants. Last week she said she didn't want him doing any physical therapy more then range of motion which is what we are already doing with his leg exercieses everyday. She is concerned that the large tumor that is in his abdominal area is weakining the pelvis and she doesn't want to put anymore strain on the area then there has to be. Anyway! He gets to work on standing HOORAY! Josh has a CT scan next week to check on things. We see Dr. Kohler next month on the 20th.
Josh is still felling pretty tired and run down today. Had a better night. We ALL slept ALL night. AMEN! He will start back up on the Sutent within the next couple of days. Keep us in your prayers.

Does everyone agree with me that it is time for healing?!?! We had a rough night last night. When Josh is off of the chemo he feels pretty crummy. Everything hurts, he is very sleepy and just uncomfortable. When he is on the chemo he feels good. He suppose to start his 3rd round of chemo tomorrow but he was suppose to go to the doctor today in medford to work out all of the details. Josh's insurance was changed to a managed care plan and they are not paying for the chemo and at 7500 per round we are praying he qualifies for patient assistance. So I am waiting for the doctor to call me back regarding today's apt. Because of the lack of sleep we got last night and the discomfort Josh is in we obviously didn't make it to Medford.

The boys are doing well. Andrew is loving school, and so am I :) He plays outside as much as I'll let him. I am still not to comfortable with him going to the neighbors unless I am outside to keep my ears open. The neighbor kids love to come over here though and play on the swing set even when Andrew is not outside. I put a stop to that one.

Joshy is such a happy boy. Eats sleeps and plays. He just took a cat nap on the couch and has woken up. Instead of crying and wanting to be picked up he is just laying here talking and kicking his legs. Sweet boy. He finally has started rolling from him back to his tummy and I find him more and more sleeping on his tummy. Scary

May the Lord bless you and keep you strong. Enjoy the beautiful weather but remember to stay hydrated :)

"For I know the plans I have for you," declares the Lord,
..."plans to give you hope and a future." Jeremiah 29:11

Wow where has the month gone? So sorry I have not been keeping the blog updated very well lately. Josh is on his last week of his second round of the Sutent. So far not many side effects this time around. His mouth is a little tender but not as bad as it was last time. This month we went to lunch once and last week Josh and I went to lunch AND to a movie all in the same day! However the next two days he slept and he was sore from getting in and out of the car, and that is why we are still looking for that perfect car with big doors so it's easier for him to transfer in and out of the car. We are searching for a '00 or newer Chrysler Concorde with tan leather interior for under 4,000. They are out there just not in our area currently. So if you know of anyone that has a car fitting our needs let me know! :) Josh finally feels up to starting physical therapy again. We are just waiting now for orders from his oncologist. His hair color that was turning gray/blonde is now back to the red/brown it was to begin with. We figure it was the Sutent that was causing the change.

Andrew has started going to school two mornings a week. LOVES it! And so does mom! He takes a good nappie when he comes home! It's nice because the school/daycare is just at the end of our road so we get to walk. He enjoyed going to VBS this week and I guess was pretty darn cute during the program last night. I didn't get to go cause I had to work. But thankfully gramma tapped it for me. He is still pretty sassy and independent, and strong willed but we are taking things one day at a time around here. No other way to do it. It seems like all he wants to do is play with his friends. Which is fine with me but when he come to ask if he can go next door to they house and jump on the trampoline my heart starts races and so bad I want to say no. Instead I say yes then stand on our side of the fence where he can't see me and watch until he is ready to come home and then I run back to the house and act like I don't know anything. He is sitting here on the table next to me telling me stories which just reminded me about his friend "fella" Andrew said "you spell it like this mom g-r-s-w-y" (when I asked him what his friends name was) anyway, Fella first showed up the other day. I was in my bedroom getting dressed and Andrew comes in "mom Fella is behind me, WHOA mom he scared me I turned around and he was right there..." At first it was kinda creepy. Then Andrew told me how Fella made a neckless at VBS too and how he is Batman and Fella is Spiderman. Interesting I tell ya.

Mr. Joshuah is my lil baby chic. His hair is finally long enough it doesn't stand strait up and not long enough to lay down so he looks like a baby chic. :) Still has strawberry blonde hair. On Thursday he rolled over from his back to his tummy. Of course nobody saw him. I made such a big deal about not rolling over for anyone but mommy or daddy and well I had him with me in the kitchen and I walked away for two mins to help Josh when I came back he was on his tummy. He panicked once he got there. So the rest of the night we had him on the floor in the living room with us in hopes he'd do it again...sure enough he did. :) I am so proud of him! Next goal sitting up then we'll talk about teeth! He is very happy and loves to watch his brother. It's sweet in the mornings after he has had his breakfast I'll lay him on Josh's lap with his bottle and every time he'll go to sleep. I call it his daddy's sweet spot. :) It was oh so sweet on Wednesday morning both boys were on Josh's lap and they were watching cartoons. It was picture perfect, that was until I got the camera.

I love my boys. All three of them. Time just seems to be going way to fast. I can't believe it's almost July. God has brought us such a long way since the beginning of this craziness we now call life. Things are looking up and we haven't had many bad days. All the thanks goes to our Lord!

OH he he he Jennifer is pregnant and that means I am finally gonna be an auntie!!! :) Not for about 7 more months but I can't hardly wait!!!!

This is one of my MOST favorite songs in the whole world. The first time I heard it was when Josh and I were in Atlanta for the Exchanged Life confrence back in May of '07. And ever since then evertime I hear this song God just speaks to me. It's like he is say I am here and I will never let go of you! I heard it on my way to work this morning and it was a good start to the day...(better then the head ache I have) If you have never heard it before just goto klove.com http://www.klove.com/Music/LyricSearch.aspx and you can listen to a sample of the song.


Matt Redman - You Never Let Go

Even though I walk through the valley of the shadow of death
Your perfect love is casting out fear
And even when I’m caught in the middle of the storms of this life
I won’t turn back I know You are near

And I will fear no evil
For my God is with me
And if my God is with me
Whom then shall I fear?
Whom then shall I fear?

Chorus:
Oh no, You never let go
Through the calm and through the storm
Oh no, You never let go
In every high and every low
Oh no, You never let go
Lord, You never let go of me

And I can see a light that is coming for the heart that holds on
A glorious light beyond all compare
And there will be an end to these troubles
But until that day comes
We’ll live to know
You here on the earth

Yes, I can see a light that is coming for the heart that holds on
And there will be an end to these troubles
But until that day comes
Still I will praise You, still I will praise You

Just a quick update..

We went to Medford yesterday to see Josh's oncologist. In a nutshell the CT he had done in April compared to the one he had done this week showed no growth of the tumors in his thoracic cavity(the scan was only done on that part of the body). AMEN! If anything they have gone done in size just mm. It could be the Sutent or the difference in CT machines or just a God thing ;) But it's given us a little bit of hope! Josh started his second round of the Sutent yesterday. Pray that his mouth won't get as raw this time around. It was pretty tough last month. He has had a couple good days in a row now which is a nice change from the bad days he was having. He and Andrew were playing Batman and Superman this morning...it was cute. I was in the kitchen making cookies and Josh told Superman that Robin was in the kitchen and to go give her (cause you know Robin is a girl) a BIG kiss! It was sweet. Joshy is usually Robin but this AM he just hung out and watched Andrew run back and forth, back and forth, back and.....well you get it.

Josh has been having a rough week. He has been off of the Sutent for almost two weeks now. We thought there would be a scan to see if there was any improvement, when we called his doctor in Medford she said usually they do two rounds of the chemo and THEN a scan. Huh, thanks for telling us that earlier. So now he starts round two on Thursday. Four weeks on then two weeks off. THEN a scan. However. Josh has been very uncomfortable and in a lot of pain the last few days. I called the doc and told her we wanted a scan now instead of waiting. The tumor on the top of his head and on the side of his head that were the last to receive radiation are visible again. Josh feels like the other tumors are all growing also since all of his pain is where ever he has a tumor. So he has a CT on Tuesday to see what is going on and to see if there is anything that needs to be taken care of. He also has an apt. on Thursday with his oncologist in Medford. Not sure exactly what for but she wants to see the whites of his eyes. He seems to be in good spirits. Good days and bad. Defiantly being carried.

We are praying for a new car to come our way soon. Something with AC, leather seats and large doors. :) All will make it easier for Josh to travel. We have a potential car we're looking at tomorrow. Pray for the best.

I have spent all week working outside cleaning things up around here. I hate the heat but enjoy working in the sun. Only one day did I BBQ myself. And yes I've heard of sunscreen and yes I had it on!

Andrew has enjoy playing with the neighbor kids. Everyday it's "mom can I go to my friends house?" My 3yo wants to know if he can GO TO HIS FRIENDS HOUSE!!! I am soo not ready for this. Do you know that they have a trampoline!?!?!? The first and only time HE went over to their house (they usually come to our back yard) this week I stood on the side walk and watched him for about the first 20mins he was there and then went back to check on him like every 5. He is such a big boy these days. We were in the grocery store this evening and like every time we are there he had to go potty... so off the the restroom we go. To make a long story short he now knows what the word echo means and everyone that was in the store I am sure now knows that he knows. :) Oh and really for the first time I dreaded walking past the toys...."mommy, mommy I want this, can I buy that, can I can I?????? Three is a fun age. Isn't it. Andrew was diagnosed with pneumonia last Sunday. Needless to say it didn't slow him down a bit! The only reason I took him to ER was because he was grunting with EVERY breath and well just not really breathing all that well. He is all better now. I hate to admit it but I was kinda looking forward to some snuggle time while he was sick....but I didn't get it cause like I said the sickies didn't slow him down.

Joshy is still growing like a weed. He has his 6mo check up next week. Cooing, and laughing. Lots of smiles. Trying oh so very hard to roll over. He is a thumb sucker and so usually what stops him from getting all the way to his tummy is his thumb in his mouth. I just love my boys. So much fun to watch them grow. It just happens waaaaaaayyy to fast as I am sure all of you who have kids know this my now!

Only one set of footprints in the sand...

My first time at the blog. its me Joshua. I hope i do it justice as wife has done such a good job so far keeping all informed. well i guess i will just dive right in. God is good all of the time, Amen. Even when i have weak days, painful days, and wish this would all just go away God is still at work within. When we are weak he is strong, and its in our weakness that his strength is made perfect. The thing that i love most about Jesus is that he is a win, win saviour. Ask yourself what is the worst that can happen in this life. Most of us would say that the worst thing is that we should die; but even in that we win because he has conquered death and prepares a place for us. Oh death where is your victory, of grave where is your sting? I'll be the first to admit that I don't look forward to pain, but again when I exchange my strength for his he seems to make all things bearable. Its as if he gives and extra measure of grace to compensate for what we lack in ourselves so that resting in him we never lack!! Hallelujah Amen to Father, Son, Holy Ghost forever.

Well yesterday was my last day of Sutent Chemo pills. I now get two weeks off in which my oncologist should order a cat scan to see if any of my tumors have changed or were affected. I hope that my mouth heals up soon, its been hurting so bad even water makes my tongue sore. I suppose if that is the worst side affect that i have then that's okay.
My insurance has been fighting against me getting a custom fit wheel chair. It looks like my doctor went to bat for me and really told them how much i need it. So hopefully i will have it soon and be able to get around better. It is really light, has a highly adjustable contoured back, and is candy apple red; wow what a hot ride, stay off the sidewalks!!.
The rest of the family is doing fine. Jenae is working hard to take care of kids and chores and so on. We are grateful to have help come in twice a day. The help does change every so often, so it seems we get someone trained and then they are moved and we have to start all over again. I am so grateful for my wife. she is the best. She takes such good care of me and our family, and i am proud to have her by my side for better or worse; her love means the world to me.
Andrew is just as hyper and on the go as ever. He is so much fun, and so much work. We are told that he is just a typical 3 year old, and i think that is right.
Baby Joshua is growing like a weed. He just started eating some rice formula with his milk and he is taking to it well. Mom cant get enough kisses, hugs, and squeezes out of him as she turns into a high pitched silly faced person herself. She will do almost anything to try to get a laugh out of him. I wish i could hold both of them more but i hurt too much to hold Andrew and can hold Joshua for a limited time only.
In closing i would just like to send a special thanks out to my church family. I often find myself speechless when i consider their care, love, and prayers. They never forget about us, and keep working to raise funds to pay for my cancer bills and other bills. I know that God is and will bless them beyond what they can bear. Well until next time, God bless and rest in his perfect peace that passes all understanding

Bare with me...I'll post an update soon!

When Jesus heard that, he said, This sickness is not unto death, but for the glory of God, that the Son of God might be glorified thereby. John 11:4



We are tired of waiting! God is doing something amazing in our lives, in the lives of others. It's time for a change. We are ready for God to heal. We have been ready since day one but it's time. We give thanks to our God for what we are blessed with. For the time we have together, the roof over our head, food in our belly, our children, our families! So many things to be thankful for. We are ready to bring glory to God to give HIM all the credit for healing! Our prayer is that God will bless the Sutent (chemo) and use that as our miracle.



Josh hasn't had many side effects to the Sutent. He has c/o having a raw mouth. His taste is really off. He was saying how bitter an orange was. I thought that was odd and thought that maybe it was just a bad piece. So the next time I cut one up for him I tasted it. It was oh so very sweet and yummy. He said it was bitter with no flavor. :) He feels dizzy/lightheaded (feels like his balance is off) when he sits up on the side of the bed. It passes quickly though. Other then that I don't think he has had any other problems with the drug. He has however been more achy the last few days. Tonight he said his skin was starting to hurt. I laugh because so many times I have c/o my skin hurting and he just doesn't understand. Well now he does. I don't like all of this but I think one of the reasons it is happening is so that Josh will have a little bit of a better understanding of how I often feel. It IS just a small reason, I know there are many. He has good and not so good days. He is doing a good job at pushing himself to get out of bed EVERYDAY and to stay on top of his bowl care. Fun stuff.



I have started back to work. Just a little bit here and there. It feels good to get out and have a change of pace. Lately if I go anywhere it's usually to the grocery store. I know your so jealous! :) Don't you just wish you we're me???

I want to hear from my readers! Leave me a comment or email me.
Lokua02@yahoo.com

I've heard this song on KLOVE many times. I've always liked it, but it's never been one of my favorites. I was in the car yesterday on my way home from grocery shopping, feeling horribly yucky when this song came on the radio. For the first time it spoke to me....no God spoke to me through this song. "I will carry you through THIS storm!" and therefore I will praise HIM through THIS storm!


Casting Crowns - Praise You In This Storm

I was sure by now
God You would have reached down
And wiped our tears away
Stepped in and saved the day
But once again, I say “Amen”, and it’s still raining

As the thunder rolls
I barely hear You whisper through the rain
“I’m with you”
And as Your mercy falls
I raise my hands and praise the God who gives
And takes away

Chorus:
I’ll praise You in this storm
And I will lift my hands
For You are who You are
No matter where I am
Every tear I’ve cried
You hold in Your hand
You never left my side
And though my heart is torn
I will praise You in this storm

I remember when
I stumbled in the wind
You heard my cry
You raised me up again
My strength is almost gone
How can I carry on
If I can’t find You

As the thunder rolls
I barely hear You whisper through the rain
“I’m with you”
And as Your mercy falls
I raise my hands and praise the God who gives
And takes away

I’ll praise You in this storm
And I will lift my hands
For You are who You are
No matter where I am
Every tear I’ve cried
You hold in Your hand
You never left my side
And though my heart is torn
I will praise You in this storm

I lift my eyes unto the hills
Where does my help come from?
My help comes from the Lord
The maker of Heaven and Earth

Holy cow! Another week. Where did it go? Would somebody PLEASE slow down time? Okay where do I start? Well currently Josh and I are at the hospital her in K. Falls. Josh is sleeping while receiving a blood infusion. Low blood count again. The doctor blames it on the cancer. We finally got an MRI done of Josh's knee and have yet to hear anything. No news must be good news? The CT that he had done last week of the head for his grumpy eye came back and we have heard back on it..........the tumor that received the first batch of radiation that was above his left eye is back or well growing again and being aggressive. At one point I heard Josh say that it was going through the bone but now I just asked him and he says "I don't know" so I guess I'll be calling the doctor this week. We, well the oncologist...Dr. Kohler in Medford thinks that Josh's knee pain that he was having (not so much anymore) is from the tumor that is in his abdomen. It seems as though it is connected with the tumor at L4 that Dr. Ching was unable to remove back in January. The two together are putting more pressure on the sciatic and other nerves that in turn caused the knee pain. But I'll getting details on that also. Josh did start the Sutent (chemo) last week. So far he isn't experiencing any side effects. Praise Jesus! I think we've finally found an antibiotic that is going to kick the persistent bladder infection. Hooray! His temp has finally dropped below 100. He is back on steroids to help with any inflammation that could be causing the knee pain. I think it's good for him anyway. It makes him feel a little bit more normal...or at least act like it. However over the last 4-5 nights he has had a bad cough and hasn't gotten much sleep so he has been sleeping most of the days. Normal? I guess it could be. :)

I have been feeling much better. Sinus/cold issues currently but better then the back issues. I am not doing much lifting in hopes to save the strength in back I still have. I have come to the realization that Joshuah is getting to heavy for me to carry him in his car seat. He is almost 15lbs, and trying to carry him one handed, and dragging Andrew (Batman these days) with the other hand and then the bag I call a purse it's no wonder my back hurts. My 3 year old Batman has enjoy jumping off of EVERYTHING. I've learned that when he says "hey mom watch this" I don't want to watch. I am ready for a house that doesn't have stairs. He jumps five, six steps up...I thought about putting the baby gates back up but yeah well he'd just JUMP OVER THEM! He he...I love my boys!

BEING CARRIED!

It was just brought to my attention that I haven't blogged since last Wednesday! So sorry! It's amazing how fast time goes when your having fun....or not. My head ache finally went away. I had a MRA on Friday, went back to the doc yesterday and the test came back normal. Hooray! However I am having lots of sciatic pain. The doctor gave me a muscle relaxer that just helped me sleep last night and really didn't help with the pain. I was able to go back and get some more acupuncture today. RELIEF! Works sooo well. I am so relaxed and not having as much pain. Oh the wonderful world of muscles.
Josh spoke with his oncologist on Monday, she really wants him to start on a chemo. Josh said that if he WAS going to do it that Sutent would be the drug of choice. It arrived in the mail yesterday. The Sutent is a once a day oral pill. Low side effects and is suppose to be pretty effective on vascular tumors. Josh hasn't started it yet. He wants to talk with Dr. Said (herbalist) in Medford first. I told Josh that at least with the Sutent if he starts it and he doesn't like it at least it's something he can stop taking. Josh had a head CT done yesterday. His left eye is puffy and droopy. Pain when with movement and he has been having some headaches. His left knee is also really bothering him but we are still waiting to get orders to have that scanned. We finally got some caregivers coming in. They come in for a few hours in the mornings and a few hours in the evenings. It's been a HUGE help! I am able to focus on my kids and my husband more then my laundry and my dishes. They help out with Josh, the kids and whatever! It's great.
Josh is currently sleeping, Joshuah is laying on the couch next to me telling me stories, trying to push himself off the couch and Andrew is suppose to be upstairs taking a nappie. However, I can here the pitter patter of his size 6 feeteez up and down the hall. I am trying to decide if I want to take advantage of the quiet time and watch a movie and take a rest myself with the chance that as soon as I get settled Josh will awake and need something or shall I attend to the filing and the putting away of the laundry????? Decisions decisions.....

Well I went to the doctor today. I have to stay down for the next 48hrs. If my head ache isn't going away by my next apt on Tuesday then we'll talk about the patch to repair the puncture site. It's a crazy thing. God's way of saying slow down and let go of being in control. I have an MRA scheduled for Friday. It will check the vessels better then an MRI. Josh is laying in his bed, I am laying next to him on the couch. Josh's mom and dad and are here helping with the house, and currently there is a care taker here who just started today. It's amazing how things change from day to day. I honestly didn't think that Josh and I both would be down. The boys are having another sleep over at auntie Sharla's. Joshuah is just starting to cut his first tooth. Is still a very happy boy. :) Andrew is crazy as ever doesn't know the difference between an inside and an outside voice. Silly boy. Josh once again is having tummy problems. Working on bowl care today. Crazy world we live in!

Just a quick note. I am STILL fighting this horrible migraine. I was back in ER last night because my limbs and mouth went numb. The doc said that it was probably an anxiety attack...WHAT? Well I got anxious when my mouth started swelling....but the cause was the anxiety??? yes I am confused. All the symptoms went away. Thought maybe I was having a reaction to the Darvocet but yet he told me to keep taking it along with Hydromorphone for the pain. CRAZY I tell ya! So any who still have pain and still on drugs. I had some more acupuncture done today and it help a lot. The pain isn't sooooo excruciating when I stand up now. I have a doctors apt tomorrow. Not sure what for but maybe they can help me figure out what is going on. During one of my trips to the ER they said that the head ache was from spinal fluid leaking at the puncture site and if it didn't stop then they would have to go in and block it. WELL. If you remember, back in November the reason my doctors didn't want to do a spinal for my c-section was because of the risk of bleeding and having to do the block. huh. I obviously wasn't thinking about that when there was a chance that there was bleeding on the brain now was I. Please keep us in your prayers. It seems as though times are getting better and then something like this knocks us down! Way down!

No change with Josh much lately. He has been sleeping better and I think overall feeling better since we switched him to a raw vegan diet. It is crazy this vegan thing but I kinda like it. A LOT of preparation. There is ALWAYS something going on in the kitchen. Josh has been putting more and more weight on his legs. Doing more squat pivot instead of using the transfer board. The radiation he just got done with hasn't affected him like the last time. No real visible change yet in the tumors on his head.
On Friday I went to the ER again! My right hands went numb, went away then my vision in my right eye got blurry, that went away. Then I wasn't able to talk very well. Couldn't get my words out. So to he hospital. Surly that doc thought it was a stroke but the head CT, chest x-ray, neck CT and spinal tap all came back normal! Once again no bleeding on the brain. As far as we can tell anyway. So I was either to drudged to remember or I wasn't told, but I guess after you have a spinal tap you are suppose to be down for like 12 hours. Well I wasn't. Got home from the hospital 5:30 yesterday morning. Woke at about 9 with a worse head ache. Stayed down most of the day then was able to get up and move about and have some dinner. HA came back and my lower back has been really sore so I took some pain pills and went to bed. Thankfully Jennifer was here, I was able to get some rest, but when I got up this am I still had a bad HA the worst I've ever had. SOOOO back to the ER. I love IV pain meds. Instant gratification! The doc said I have a HA from the spinal tap. Gave me the meds and some fluids and sent me home to bed for a few days. Crazy I tell ya.
My dad and Marge, the girls, Jenn and Gregory and cousin Tamara and her hubby Andrew all came down for Easter. Uncle Erick and Aunt Sharla along with Josh' parents are all here. We celebrated Andrew's birthday last night. He finally got his pink superman cake. Actually it was pink cake with white frosting and big red A. It was cute. he had a great time.
Okay so my pain meds are finally starting to work so it's off to dream land I go. I'll try to get something more posted again soon.

Happy Birthday Alisha!

What a day! Geesh, what a WEEK! First off sorry once again for the delay in info. Once again we were at a hospital that didn't allow me to connect to the Internet. Only access I had was the Safeway parking lot. However I could have gone in, but I was always in a rush to get back to Josh when I WAS at Safeway. So. I've truly felt like this week was one of my "less" stress weeks. That was until I got a migraine on our way over to Medford on Monday. Lasted till Tuesday then hit me ER HARD on Wednesday. Spent the afternoon and evening in the ER. It was different then my usual migraines and it had me very worried. Blood work and CT came back normal. Praise Jesus no bleeding on/in the brain! I received some IV fluids and a dose of Compazine and Benadryl together. Help with the pain as SOON as it entered the blood stream. Well it just made me not care about the pain that is. However. I don't know if it was the two of the meds together or just the Benadryl but I was oh so very sick that night and the next morning. Just wanted to crawl out of my skin. It was very weird and very uncomfortable! I've had Compazine before and didn't react that way. I usually like the way I feel with a dose of pain relievers IV. Helps me SLEEP! Anyways, my point. Okay well I don't remember...
Radiation went well for the most part. The first treatment on Monday took a very long time. After that it was in and out within the hour. On Thursday Josh's left arm/shoulder started hurting him really bad! Probably from all of the pressure reliefs he had to do while waiting with me in the ER. :( He didn't stay all evening but he was with me longer then he should have been. So his shoulder was pretty sore. It took a lot of tricky movements to get him from his bed to wheelchair to gurney to table...and then back. Today, well yesterday went a lot smoother. His shoulder is/was still really sore but the techs moved him very well. On Wednesday we met with Dr. Kohler the oncologist in Medford. Very nice lady. She recommended some of the same chemo that the docs did in Portland. Still going to check on a particular one called Sutent. We are still trying to get a hold of the docs in Boston to see if we can get that worked out. On Thursday Josh did an interview with a Grants Pass radio station. Tear. It went really well and we are hoping that it will bring in some funds to help with the Boston trip shall it come to that. Today Josh had a full body CT to check in on our little friends that have worn out their welcome. They are just being so very rude and won't LEAVE! Gosh darn it! My prayer is that this scan will show that some of these tumors have got the picture and are starting to disappear!
I am sure there is something I am forgetting to tell you. When I remember I'll post it. :)
Because of some unforeseen circumstances today my plans to have dinner with some of my relatives (including my papa and grammy who have yet to meet baby Joshuah) did not happen this evening. Josh felt really bad and apologized, thinking it was his fault... it wasn't but, I thought about it for awhile and told him... that even though today didn't go like I had wanted it to and there are many stressful days and days that we could just live without, I am thankful for what I do have and would rather have 100 crazy days that don't go as planned with him then to have just 1 good day. And I really do feel that way. It's a crazy life we live but it's our life and God has BIG plans!


Congrats Tom and Julie on the little blessing! I can't wait to meet him!!!!

Just a quick note.
We all went to church today for the first time as a family of 4! And we were there early! Pat on my back, he he. :) It was so very nice. Anyway. I just wanted to say thank you to all of you! For all of the thoughts, prayers and words of encouragement. It means a lot to us! Even though it was hard for Josh to get up (out of bed) earlier then normal and exhausting to transfer in and out of the car. It made his day, getting out of our house and spending time in God's house. Josh stayed up in his chair all day! Just at 830 he got back in bed. It was great to see him up and "functioning" like himself again. However he barely got laid down and he was asleep! But today was just a blessing and I wanted to say Thank YOU!

Wow, it's been a long week. Sorry for the delay of info. We went to Medford on Thursday and met with the radiologist. Josh starts treatment on Monday. It will only be five treatments. Praise Jesus! So we'll go over on Monday and come home Friday. We'll be staying in Medford, within walking distance to the hospital. So we'll be able to walk/wheel over for treatment providing it's not raining. That will make it easier for Josh not having to transfer in and out of the car. On Wednesday we meet with the oncologist to discuss chemo. The boys are going with us to Medford. Andrew will probably stay with Josh's parents part of the time. They are also going over for the week. (I think). Josh has been feeling pretty tough. Good days and bad. Gets tired real quick.

Funny,
We bought a new T.V. for "Josh's" room while in Medford. That night the boys stayed with Shelly, the next day when she brought them home Andrew was sleeping so she laid him on the couch. He woke, happy (unusual) talking, playing... walks into the other room headed for the potty and stops dead his tracks. "MOM I didn't want THAT T.V. I wanted you to get me a PINK one not black!" And he went on. Nothing else. That was it. But he wanted to make sure I knew he wanted a pink T.V. He didn't even know we were going to get a t.v. All I could think of was hello kitty. Shhhh don't tell him. I lied and told him they don't make pink T.V.s.
Another. Last night he went to bed in his bed, but at some point I awoke to him getting into my bed. Anyway. About 5am I had gotten up to help Josh. (Not Joshuah, he has been sleeping if not all most of the nigh) When I went back to bed Andrew sat strait up and said "mom, I have your phone." which he did, (that's my alarm) then he laid back down asked me to go find his flashlight so he could "put it on the ceiling". "Andrew go to sleep!" Oooookkkkkkkkkk Mom! :) It was cute. That boy can make me soooo very angry but even at 5am he can make me laugh!

I am sitting here with Joshuah on my lap, Andrew in the tub and Josh calm and sleeping. For now. About an hour ago I was screaming because two of the guys were pooping and the other screaming...won't tell you who was doing what, cause right now any one of them could be doing either! Oh the joys of being human. I am still so happy to be home and to have my kids home with me. Jennifer brought them home last night. She stayed for today and went home this evening. I am so blessed to have her. Jen is such a big help when she is here. We are so much alike it's like having two of me. Which I always need!

Josh has had a rough day. Not feeling that great. Lots of pain and overall discomfort. It looks like we are going to Medford on Thursday for a consultation with the radiologist, get all the details about the next sequence of radiation. We really are not excited about it. Depending on how many treatments it is going to take we will probably be staying in Medford. Not sure yet how it's all going to work out. My point, I don't want to be away from home anymore. But we gotta do what we gotta do. On the first I believe, we meet with an oncologist over in Medford to discuss chemo options. We are still waiting to hear back from the Boston trial. Not sure how chemo is all going to come together either. Through all of Josh's discomforts and troubles, today he led and old friend to Christ. She will turn 90 this year. There are reasons we have trials in our life. There are reasons we are going through what we are. Every now and then something like this happens and we see one of those reasons. We are very thankful for what we DO have and are thankful for each day that God gives us together, to be with our children and be a witness of God's grace and love. All honor and glory to be given to God!

We FINALLY made it home! I am so very thankful for that. It has been a long week! The chest x-ray that Josh had done Thursday night checking for pneumonia came back normal. The x-ray done of his abd. showed the tumor that is in his left lower quadrant abdominal area. It is pushing on his intestines causing the feeling of a blockage. However no stool blockage or obstruction from the tumor. Yet. One doctor suggested a colostomy now as a preventative measure instead of waiting until the obstruction happens and it has to be done in a emergency situation. The surgeon suggested not doing it until we have to. We agreed! So keeping up with strong bowel care is what we're going to do. This tumor that is in the abd is about 4in by 5in. Large. It has grown a good amount over the last 6wks or so. Because of the size it is now and because the intestines are now involved the doctor that talked to us about removing it back then now isn't going to do it. He said that there is to many other cancer spots that will become a bigger problem later and doing this surgery isn't a "priority". But then a different surgeon basically said that because of where it's at and because of the important nerves and arteries that are a part of this tumor, to remove it would kill Josh. There would just be too much bleeding. SO, not doing that surgery at this point. It's frustrating because 6wks ago when the one doctor was talking about removing it, Josh was having bowel problems and I was asking about an x-ray just to make sure he didn't have a blockage. And every time I've asked since then the doctors have just said no reason to because his stomach was making noise and if there were a blockage or obstruction that wouldn't be happening. WELL! Had they done the darn x-ray then and realized that just maybe if they didn't remove this tumor before it got any bigger we wouldn't be in this situation!! But that didn't happen so here we are. Wait and see. At this point we don't have a definite plan. We are going to meet with an oncologist in Medford around the first to discuss radiation of the tumors on the top of his head, the side of his head and his right femur. The radiologist said that visually the radiation worked for the other spots on his head, and he's right. From the "looks" of it it did work. You can't see them anymore. But we'll get another CT or MRI just to make sure. There is also talk about starting chemo. Not sure how that is going to play out but the doctors at OHSU think that would be a good idea. Try to find something that is going to knock this all out since surgery really isn't much of an option anymore. Things are changing faster then we'd like at this point. A month ago they were giving him 1-5 yrs and now today the surgeon said months when Josh asked him about a prognosis. However does that mean 2 months or 36??? I like 36 better :) I am not ready for all of this to be happening so fast. But we can never be totally prepared can we? We are praying for restoration on earth. My trust is in God. I know he has a plan and he knows what the future holds. We may not know right now the reason for these circumstance and we may never know, but that is okay because God is in control!

Scroll to the bottom of the blog for pictures!

Another day. Well we are probably going home tomorrow. However Josh is feeling pretty sick. His oxygen is still low and his temp is still slightly elevated. If he doesn't feel like he is strong enough to transfer into the car and make it home tomorrow then we'll just have to put it off another day. But right now the plan for tomorrow is home. He is going to have and x-ray done this evening to check for pneumonia and one to check his abdomen for a blockage or reason for his discomfort. We know he has a tumor in his abd. area but not sure if that is what is causing the bowel problems. Until next time...

So we are looking into this chemo trial that is going on in Boston. As we are sitting here discussing the details we've come to realize that if we go it will be difficult for just the four of us to go. And wouldn't want to leave my kids at home. I am wondering if any of you have friends of family in the area they we could get in contact with if needed for some help. Not sure how or if this is all going to play out but we're just looking at options at this point.

We are waiting for the radiation team to come is and discuss further radiation. Dr. Hayden (orthopedic surgeon) said that there wasn't a tumor in his right thigh area that it's in the femur itself. So I am confused. But I guess he thinks doing radiation on the bone will help slow the cancer down in that area so the bone can heal up a little bit. That is if the radiation helped of course. I asked the doc this morning what he was thinking as far as discharge, what the criteria was for Josh to be able to leave...he said that he was hoping to have the meeting concerning Josh with the other doctors today instead of next week when we are suppose to come back up for an appt. So we're in limbo until tomorrow AM to see if we have to come back next week. It's just a wait and see thing I guess. I hate it but if we don't have to come back up next week that would be fantastic. Josh isn't to keen on the idea of more radiation. Will let you know what those docs have to say this afternoon.

Not much changed today. Josh is feeling pretty good considering. He sat up on the side of the bed. Progress. Still hope we'll be headed home come Thursday or Friday. However it's bittersweet because next week Josh has an appt up here and going home just to turn around to come back is difficult. The traveling is really hard on Josh. There is talk about more radiation. It looks as though it helped in the areas on his face but a CT will be done to verify. Not sure what is going to happen. At one point Josh said he really isn't wanting to do more radiation because it made him so sick last time. It's about the quality of life not the quantity I think. Our God is big and continues to carry us through day after day. We give him praise and glory for the time that we do have. I am thankful our lives are in his hands and that I don't have control over it.

Surgery went well. He came to his room awake this time. Not really that groggy. Kinda grouchy...go figure. :) I havn't been able to talk with the doctor but will in the AM. Will keep you posted.

AGH!! Finally Josh is in surgery! He has been fasting since 12:00 last night not knowing when surgery was going to be today. At around 2:30 Dr. Hayden FINALLY came in and we got SOME questions answered. From the sounds of it this is a NEW tumor and the cancer is already in his blood system.... This surgery is to stabilize his right femur where the tumor is weakening the bone. The doc said that the tumor is throughout the femur and to remove the whole tumor would mean taking out the entire femur and replacing it with a titanium rod. Which they are putting the rod down the center of the femur but not removing the bone. He said he would probably remove about 3/4 of the tumor. They came and took Josh to the "holding" area around 5:30. At 7:30 they asked if surgery could be done in the AM cause the case the the doc was currently working on was taking longer then expected and then there was and ER case next...fine whatever. Then a nurse comes back and says well he has clinic in the AM can he do it in the evening? Josh didn't like the idea of going hours and hours without eating and then the possibility of it being moved again...so she called the doc and comes back and says they ARE going to do it tonight. SO I just got off the phone with a nurse in the OR and they started at about 10:00. It sounds like this is going to be a pretty quick surgery and a few days in the hospital. Fingers crossed! Please keep him in your prayers. Doctor Hayden basically said that the cancer is being very aggressive, growing faster then they expected and in so many words said that they are not going to be able to "keep up" with just surgery. More radiation? Chemo? Not sure what is going to be the solution. I don't think the docs even know. It's hard because we get told one thing and then it changes. There is going to be a lot going on over the next few days with doctors I hope! So stay tuned for more updates. Lots of loves and thanks for all the encouraging thoughts and prayers!

Friday started off to be a good day. It was sunny and warm in Medford. Felt like a crisp summer morning out on the lake...
Got Josh all packed and the car loaded to come home. THEN we got a call from a PA at OHSU. She works with Dr. Hayden Josh's internist. Dr. Hayden and Dr. Ching finally got theMRI films that were done last week and after hours of debate decided that they want Josh in surgery on MONDAY!!! From what the PA told me there is a mass/tumor pressing against the neck of the femur which we knew but if the bone does fracture and the tumor breaks, tears, moves whatever it will spread the cancer into the rest of his body. This tumor is in his right hip. I guess a different one then the one that we've known about. Which makes me question the fact that this is a slow growing cancer. I think NOT! How frustrating! We got home last night (Friday) and will be headed up to Portland tomorrow for surgery on Monday. Keep us in your prayers. We don't have much info on this surgery since they called Friday afternoon-going into the weekend we don't have any communication with the docs....

SO. Not sure how but we were not given the correct information about the tumor on Josh's head. I love doctors and they all have a gift from God to care for people in whatever way they do BUT the communication between some are not all that great! What would we do without them? Anyway...the tumor at this point has not gone through the bone and is NOT eating at the brain tissue. AMEN!

We are going home tomorrow (Friday). Hooray! Joshuah is doing MUCH better tonight will be released tomorrow. I am sooo very thankful for the care he has gotten here in Medford. The nursing staff is wonderful and I will miss them. Josh too is ready to go home. Time for some R&R and time to develop a routine again...until we go back to Portland that is. Oh and that has changed also. At the weekly meeting at OHSU Josh's doctors decided that they all wanted to meet with him at the same time (I think that is how it went) and therefore rescheduled his appointment for the 25th. So we get a little bit more time at home. Hooray for that!

Well. Joshuah is still in the hospital trying to get over this nasty RSV virus. Overall he is doing pretty well but he is having a hard time keeping his oxygen level up. He does good while he is awake, goes up and down but then when he falls asleep it drops and doesn't come back up. :( He still has a yucky cough, which will last a long while. He hasn't been eating as well...of course. So I've been giving him some pedialyte so he doesn't get dehydrated. The doctor said today that he will probably release Joshuah tomorrow if he doesn't seem to be having any difficulties breathing. He sad that we could watch the monitor for days and nothing change. As of now he hasn't had any "difficulties" since we've been here, with the exception of being congested and coughing up a lot of mucous... The doctor said that Joshuah's ears look a little pink and so he started him on a antibiotic. Plus his lungs are still crackly so the abx will help if it starts to turn into pneumonia. Crazy I tell ya! But he has been VERY smiley today. :)

To make a long story short OHSU did a scan of the lump that Josh noticed on the top of his head a couple months ago that has just been getting bigger. The test showed that the tumor has gone through the bone and is eating the brain tissue. That is all the info we have a this time. We don't know if that tumor has just grown or if it's spread and there are more in the brain or what. Josh also had a MRI done here in Medford last week and it showed that the tumor in his pelvic area (not sure if this is a new one or the same one) is putting pressure on the neck of the femur and if he puts too much weight on that area then there is a high risk of fracture. SO until Josh's doctor here talks with Dr. Ching his doctor up in Portland he isn't to put ANY weight on his hip. He has an appt in Portland next Tuesday to meet with the oncologist and I think the surgeon. We'll see what happens.

When it rains it pours... This actually feels like a hurricane.

Josh is doing pretty good. Nausea comes often. His upper body strength is getting a lot better along with his leg movement. Still working on transfers. No standing yet, but that will come with time. I finally got over my cold and the boys and I came over to Medford last Saturday.

Last Thursday Joshuah started with a yucky nose. Didn't get much worse then that. The boys spent the night with Roy and Shelly Saturday night and then on Monday Joshuah stayed with cousin Amy. Tuesday he started with a NASTY cough, fever and breathing difficulties. :( So I went and picked him up that night and took him to the ER at the hospital that Josh is at. I was thinking RSV but the test came back negative. He spent the night with me at the hospital. Took him to his follow up appt with the pediatrician here and he said "yes he has RSV, I am not even going to test him again." So Joshuah got a breathing tx in the office and they sent us "home" with a nebulizer and rx for Albuterol. We did treatments every 6hrs to help with the symptoms. He had a hard time breathing and eating through the night because of his cough and from being so congested. On Thursday he seemed to be doing worse so I asked Josh's nurse to hook Joshuah up to the O2 machine....79% Geesh! Back to ER. They game him O2 and started a IV and did another RSV test. Again it was negative. He was admitted to the pediatric unit at a different hospital then Josh. Today is day 3. His O2 level is still low without the O2 stuffed up him nose. Today they took out his IV since he is having more wet diapers and eating better. They also took him of the heart monitor. All he has now is his O2 stuff. :) He is fussy-to be expected. Not sure when he gets to go home. Maybe tomorrow or Monday. Oh the RSV test they did here came back positive!

Soooo...on that note. Andrew is being content as ever. He went home to Klamath with Roy and Shelly for a few days and is now in Eugene with papa and nana. He is a silly little boy. I was talking to him this am on the phone and he was going on and on about lots of stuff. I understood most but not all of it. He made sure I knew that he had a blue sucker in his pocket for later. :)

Hooray for the cold and flu season! NOT! It's good for business but it bites being the patient! Needless to say I got the crud that is going around...mostly sinus cong/pressure blah blah blah. It's taken almost a week and I am FINALLY starting to feel somewhat normal again! However now Joshuah has the yucks. Andrew just has a runny nose and has passed the V&D bug. I would much rather be sick myself instead of my kids. Because we have all had the germs we have yet to make it to Medford to see daddy. :( Hopefully we will be able to head over by Saturday. As soon as the fevers subside.

I have not been able to talk with Josh much. They are keeping him busy. From what I can tell his pain is mostly under control but he is still pretty sleeping. Trying to find that happy medium is a PAIN! He is getting lots of therapy, which is what we want. The care at Providence seems to be really good. It sounds like they are on top of things and get stuff done now instead of later. Haven't heard exactly what the plans are. When we were in Portland they were saying two weeks in rehab so who knows what has changed.

Andrew has been a crazy monkey lately. He is becoming more and more independent as the days go on. I wasn't moving fast enough the other night so he go himself dinner out of the fridge and helped himself. Cold lasagna...yummy. This morning I wasn't ready to get up when he was so I asked him if he wanted me to put cartoons on so I could sleep a lil longer...well he turned the T.V. on for ME and went and got himself dressed and went potty. Then I heard him go down the stairs and messing with stuff in the kitchen. That was my cue to get up and get breakfast going. However he would have done it himself...he was pouring choc teddy grahams into a baggie when I came down the stairs. Cute. He has had great fun spending time with Auntie Sharla. Everyday he asks me where "Shala" is and if he can go to "wogers" (Rogers) house. Very cute. He and Joshuah spent the night over with Uncle Erick and Auntie Sharla the other night so I could get a good nights sleep. And I DID! Thank you Moika!!!

Joshy is getting big. Of course. :) I wouldn't expect anything less. He has been making non crying sounds over the last few days but really starting cooing yesterday. Oh so sweet! No smiles yet. But he is working on it. He is awake more during the day, eating nearly 4oz, holding his head up pretty darn well, and looking more and more like his daddy every day.

Pic #1 Andrew was "doing the dishes"

Pic #2 I LOVE sleeping 3 year olds!

Monday Josh will be moved to Providence rehab center in Medford. He is getting stronger everyday, but it is still difficult to stay determined when on all of the pain pills. But each day is a new one. He has been able to get up and into his wheelchair several times this week. Got a shower yesterday but then sounded really tired and uncomfortable when I talked to him last night. The boys and I came home yesterday to regroup. Both of them had their regular doctors appts. yesterday. Andrew is STILL 30lbs and 35in. Joshuah is 10-0.5lbs and 21in. THANKFULLY Andrew is current on his vaccines. Joshuah however had to start his journey and got 5. I am a horrible mother and didn't make sure I had Tylenol on hand so he was pretty fussy last night BUT he slept ALL night!!! That was nice....kinda scary, I woke up often. Maybe it's a sign of things to come.

Riding in the car with a 3yo is much more exciting then anyone leads you to believe. I never know what is going to happen the next time we get in the car for a 2-3hr drive...
We left Eugene yesterday am around 930. We were not even to Oakridge yet (30mins from town) and my very verbal Andrew got silent. I didn't think anything of it, he was eating a fruit bar. Then; "mom, I need a wipe" "why Andrew what happen?" "my fruit bar got on my car seat." Just as I am looking back at him his fruit did indeed got on his car seat....AFTER it had been chewed up and digested! ewwwww.....gross! OK no prob. So we pulled over changed clothes, cleaned up the seat. I had to remove the car seat straps and buckle because they were saturated! So he got to ride illegally with the regular seat belt. He thought he was hot stuff, I on the other hand thought for sure I was going to get pulled over for one reason or another and then it would be all over. But I didn't! So then we are working out way up the mountain and again!!! This time it was more corn nuts and m&m's that he had sneaked out of the front seat while I was cleaning up his first mess! So again, pull over change clothes, clean the car seat blah blah blah. Thank goodness he fell asleep after that! He has been fine ever since and kept his dinner down last night. He slept with me last night, woke at one point gagging. I did what any good mother would do and got him the garbage can and a towel...just in case and went back to sleep :) I didn't wake up with puke in my face so that's a positive. I am hoping he was just getting car sick but I feel pretty lousy today. However mine is all sinus and achy body. So who knows. Lucky for Joshuah he slept through all of our lovely events.

Holy moly. I love it when government offices like to close at 3:58 instead 4pm and why not close at 5! Needless to say I was able to get the birth certificates for the boys but not the SS cards. Hopefully tomorrow. Anyway it looks like we're going to Medford for rehab. It will be interesting that's for sure. Not sure when we will go but within the next few days I am sure.

So I woke up this morning with a head ache, body aches and an upset tummy. Rolled over and went back to sleep and finally got out of bed and showered at noon. All the while the doctors are coming into the room discussing things with Josh and I am SLEEPING. UGH! The little bit of extra sleep was nice. That is probably why I feel so crummy. Lack of. At least the sun in shining here in Portland today. Hooray for that!

Dr. Hayden a Oncology tumor specialist (whatever that means) came in this morning (while I slept) and discussed further surgeries with Josh and Shelly. From the sounds of it the largest tumor Josh has is wrapped around his sciatic nerve in his left hip. The explains a LOT! Josh has been having this horrible hip/sciatic pain for yeeeeeaaaaaaaaarrrrs. Which leads me to the conclusion that this is a slow growing cancer. I think Dr. Hayden did say that this morning. Anyway so with this particular tumor Dr. Hayden would go into the area and remove the whole muscle that the tumor is attached to, doing no damage to the sciatic nerve. About 3-4 days in the hospital for that surgery and then some time in rehab. He talked about the tumors in is lungs. Said there is a thoracic surgeon who can remove the tumors in the lungs and the ones around his rib area. But not a lot of details on that surgery. SO. That is what we know at this point. Still unsure of where Josh wants to do rehab at this point.

Pray for me this afternoon. I am headed out to find the Vital Statistic office and the Social Security office to obtain a birth certificate and SS card for my boys. You'd think I would have had all of it. It's something you don't think about until you need it! But hey at least I'll be enjoying the sunshine!

"Mom, wheres my happy birthday cake?" That was Andrew's response to me after I told him happy birthday today. It was cute. Made me feel bad, but cute. I told him I am going to make him a cake when we got home...a pink one. :) He was satisfied with that and decided that Josh's left over red jello custard dessert was his happy birthday cake. He is a character. I probably shouldn't tell this but on our way up to Portland yesterday we were between stops and Andrew says "MOMMY! my poop is coming out." That's his new thing, wait till it's happening to tell me. Anyway...so what else can I do besides pull over on the side of I-5 and he took care of business...no kidding less then 10mins down the road again "MOMMY! this time with tears, "MY POOP IS COMING OUT!" Then... silence. Oh man Andrew...really? Finally we got to a potty. I didn't realize the mess went through his pants, I had only brought in extra undies. "Mom where's my pants" well Andrew they are in the car I'll get them in a min. He wouldn't walk out to the car so here I am Joshuah in his car seat in one hand and Andrew in his sweatshirt, undies and his tennis shoes in the other hand. Wish I had a camera. Thanks to the nice lady who offered to carry Joshuah to the car. I was laughing the whole time. I love the mind of a 3yo. ANYWAY!

Josh is doing a little bit better today. Still very uncomfortable but better. He sat on the side of the bed again today and got in his wheelchair for a few hours. Progress! Very tired though. He had an x-ray and a EKG done today. His side/chest/rib pain hasn't gone away yet and now it's on the other side. Of course we haven't heard what the results are yet. Surprise. Providing on how Josh is doing tomorrow and on to Thursday he may be released. Talking about Providence rehab center in Portland or Medford maybe rehab in Klamath, but I am thinking not. Rehab at Providence consist of about 3hrs of rehab a day and two weeks there. Rehab in Klamath is 1hr a day and about four weeks. But it's up to Josh so we'll know more tomorrow on what he wants to do.

It's been almost a week since surgery. I can't believe how fast time goes. Josh is hanging in there, just like the rest of us. He had been experiencing some excruciating right side rib pain. a 15 on a 0-10 pain scale. "It's the worst" He has been on the morphine pills and the neurontin but it just seems to take the edge off. The doc now says that they had to remove a part of a rib and that is where the pain is coming from. Why didn't they tell us this before?? Who knows. It's nice to have a reason but I would still like to have an x-ray done to show there isn't anything else going on.....like a pneumothorax (collapsed lung) for instance...been there done that. We'll see what happens tomorrow. I drove down to Eugene yesterday to see the boys. I've missed them TONS. And it is soooooo nice to be with them. I am headed back to Portland tomorrow with Joshuah and maybe Andrew. Andrew's birthday is on Tuesday and Josh and I wanted to at least see him on that special day. :) Three years old. I can't believe it! Where did my baby go? Joshuah is doing well. Started to eat more at a time and sleep longer at night. Except when he has a tummy ache which seems to be happening a lot lately. I think we'll be changing his formula.
Please keep praying for us. For Josh's pain to get under control, for his strength to come back quickly and for his emotions to stay positive. I appreciate all the thoughts, prayers and words of encouragement. Thank you sooo much. Please feel free to contact me if you have questions and I would love to hear from you!
Lokua02@yahoo.com

These are they days of our lives...

Josh is ready to be moved out of ICU but we are still waiting for a bed/room on another floor. Last night he was taken off of the monitors. Still on O2 but that's it. This morning one of the lines was taken out of his neck and 2 of the drains were removed from his incision site. He had 4 drains on his back at the site. I haven't seen the incision itself but the bandage goes from about the top of his shoulder line all the way down to his tailbone. Pretty cool if you ask me :) Yesterday PT and OT came in and made Josh sit up on the side of the bed. He did really great! A little bit dizzy and his strength wasn't that great of course...to be expected. He is using the morphine less and less so I hope that means that with the Tylenol and the Neurontin his pain is getting under control. We are moving right along and God is carrying us through. Thanks for all of the thoughts, prayers and encouragement!

Josh is still in ICU. Doing as well as could be expected. He's very uncomfortable. He is on Morphine PCA for pain currently. If he isn't frustrated cause of the pain then it's because he can't wake up. It's a never ended circle I tell ya. He has yet to answer me on if he would rather be in pain or be sleepy....
He has had the most pain in his sternum area- from all the muscles stretching and tissue being pulled and then of course his back hurts. I have NO idea why...geesh. :) Yesterday it was hurting him really bad to be moved/rolled/shifted. Today he said it didn't hurt as much when they turned him. That's a positive! The "pain management" team (one guy) came in yesterday and did an assessment. Because the pain that Josh is experiencing is mostly nerve pain they are going to try him on neurontin (for seizures) he doesn't have seizures but it helps a lot of people especially right out of surgery with pain, because of all of the disruption that has been done to the nerves during the procedure. We'll see. My hope is that his pain will get under control and he can be on something that doesn't make him so sleepy. Even though rest is good for him he is still going to need to get up and get his muscles working, per Dr. Ching. The talk yesterday was that today Josh would be moved to a different floor. Probably back up to orthopedics where he was before surgery.
That's the story for now. Please keep us/Josh in your prayers. We've got a long road ahead of us. Pray for strength to come back into Josh's legs quickly and of course for quick healing. He is already ahead of the game with getting off the ventilator yesterday. AMEN! Also please keep Andrew and Joshuah in you prayers. There are still in Eugene with auntie and papa doing pretty good, but it's has to be hard on them...