Josh has been having a rough week. He has been off of the Sutent for almost two weeks now. We thought there would be a scan to see if there was any improvement, when we called his doctor in Medford she said usually they do two rounds of the chemo and THEN a scan. Huh, thanks for telling us that earlier. So now he starts round two on Thursday. Four weeks on then two weeks off. THEN a scan. However. Josh has been very uncomfortable and in a lot of pain the last few days. I called the doc and told her we wanted a scan now instead of waiting. The tumor on the top of his head and on the side of his head that were the last to receive radiation are visible again. Josh feels like the other tumors are all growing also since all of his pain is where ever he has a tumor. So he has a CT on Tuesday to see what is going on and to see if there is anything that needs to be taken care of. He also has an apt. on Thursday with his oncologist in Medford. Not sure exactly what for but she wants to see the whites of his eyes. He seems to be in good spirits. Good days and bad. Defiantly being carried.
We are praying for a new car to come our way soon. Something with AC, leather seats and large doors. :) All will make it easier for Josh to travel. We have a potential car we're looking at tomorrow. Pray for the best.
I have spent all week working outside cleaning things up around here. I hate the heat but enjoy working in the sun. Only one day did I BBQ myself. And yes I've heard of sunscreen and yes I had it on!
Andrew has enjoy playing with the neighbor kids. Everyday it's "mom can I go to my friends house?" My 3yo wants to know if he can GO TO HIS FRIENDS HOUSE!!! I am soo not ready for this. Do you know that they have a trampoline!?!?!? The first and only time HE went over to their house (they usually come to our back yard) this week I stood on the side walk and watched him for about the first 20mins he was there and then went back to check on him like every 5. He is such a big boy these days. We were in the grocery store this evening and like every time we are there he had to go potty... so off the the restroom we go. To make a long story short he now knows what the word echo means and everyone that was in the store I am sure now knows that he knows. :) Oh and really for the first time I dreaded walking past the toys...."mommy, mommy I want this, can I buy that, can I can I?????? Three is a fun age. Isn't it. Andrew was diagnosed with pneumonia last Sunday. Needless to say it didn't slow him down a bit! The only reason I took him to ER was because he was grunting with EVERY breath and well just not really breathing all that well. He is all better now. I hate to admit it but I was kinda looking forward to some snuggle time while he was sick....but I didn't get it cause like I said the sickies didn't slow him down.
Joshy is still growing like a weed. He has his 6mo check up next week. Cooing, and laughing. Lots of smiles. Trying oh so very hard to roll over. He is a thumb sucker and so usually what stops him from getting all the way to his tummy is his thumb in his mouth. I just love my boys. So much fun to watch them grow. It just happens waaaaaaayyy to fast as I am sure all of you who have kids know this my now!
Only one set of footprints in the sand...
Saturday, May 30, 2009
Thursday, May 21, 2009
My first time at the blog. its me Joshua. I hope i do it justice as wife has done such a good job so far keeping all informed. well i guess i will just dive right in. God is good all of the time, Amen. Even when i have weak days, painful days, and wish this would all just go away God is still at work within. When we are weak he is strong, and its in our weakness that his strength is made perfect. The thing that i love most about Jesus is that he is a win, win saviour. Ask yourself what is the worst that can happen in this life. Most of us would say that the worst thing is that we should die; but even in that we win because he has conquered death and prepares a place for us. Oh death where is your victory, of grave where is your sting? I'll be the first to admit that I don't look forward to pain, but again when I exchange my strength for his he seems to make all things bearable. Its as if he gives and extra measure of grace to compensate for what we lack in ourselves so that resting in him we never lack!! Hallelujah Amen to Father, Son, Holy Ghost forever.
Well yesterday was my last day of Sutent Chemo pills. I now get two weeks off in which my oncologist should order a cat scan to see if any of my tumors have changed or were affected. I hope that my mouth heals up soon, its been hurting so bad even water makes my tongue sore. I suppose if that is the worst side affect that i have then that's okay.
My insurance has been fighting against me getting a custom fit wheel chair. It looks like my doctor went to bat for me and really told them how much i need it. So hopefully i will have it soon and be able to get around better. It is really light, has a highly adjustable contoured back, and is candy apple red; wow what a hot ride, stay off the sidewalks!!.
The rest of the family is doing fine. Jenae is working hard to take care of kids and chores and so on. We are grateful to have help come in twice a day. The help does change every so often, so it seems we get someone trained and then they are moved and we have to start all over again. I am so grateful for my wife. she is the best. She takes such good care of me and our family, and i am proud to have her by my side for better or worse; her love means the world to me.
Andrew is just as hyper and on the go as ever. He is so much fun, and so much work. We are told that he is just a typical 3 year old, and i think that is right.
Baby Joshua is growing like a weed. He just started eating some rice formula with his milk and he is taking to it well. Mom cant get enough kisses, hugs, and squeezes out of him as she turns into a high pitched silly faced person herself. She will do almost anything to try to get a laugh out of him. I wish i could hold both of them more but i hurt too much to hold Andrew and can hold Joshua for a limited time only.
In closing i would just like to send a special thanks out to my church family. I often find myself speechless when i consider their care, love, and prayers. They never forget about us, and keep working to raise funds to pay for my cancer bills and other bills. I know that God is and will bless them beyond what they can bear. Well until next time, God bless and rest in his perfect peace that passes all understanding
Well yesterday was my last day of Sutent Chemo pills. I now get two weeks off in which my oncologist should order a cat scan to see if any of my tumors have changed or were affected. I hope that my mouth heals up soon, its been hurting so bad even water makes my tongue sore. I suppose if that is the worst side affect that i have then that's okay.
My insurance has been fighting against me getting a custom fit wheel chair. It looks like my doctor went to bat for me and really told them how much i need it. So hopefully i will have it soon and be able to get around better. It is really light, has a highly adjustable contoured back, and is candy apple red; wow what a hot ride, stay off the sidewalks!!.
The rest of the family is doing fine. Jenae is working hard to take care of kids and chores and so on. We are grateful to have help come in twice a day. The help does change every so often, so it seems we get someone trained and then they are moved and we have to start all over again. I am so grateful for my wife. she is the best. She takes such good care of me and our family, and i am proud to have her by my side for better or worse; her love means the world to me.
Andrew is just as hyper and on the go as ever. He is so much fun, and so much work. We are told that he is just a typical 3 year old, and i think that is right.
Baby Joshua is growing like a weed. He just started eating some rice formula with his milk and he is taking to it well. Mom cant get enough kisses, hugs, and squeezes out of him as she turns into a high pitched silly faced person herself. She will do almost anything to try to get a laugh out of him. I wish i could hold both of them more but i hurt too much to hold Andrew and can hold Joshua for a limited time only.
In closing i would just like to send a special thanks out to my church family. I often find myself speechless when i consider their care, love, and prayers. They never forget about us, and keep working to raise funds to pay for my cancer bills and other bills. I know that God is and will bless them beyond what they can bear. Well until next time, God bless and rest in his perfect peace that passes all understanding
Thursday, May 14, 2009
Sunday, May 3, 2009
When Jesus heard that, he said, This sickness is not unto death, but for the glory of God, that the Son of God might be glorified thereby. John 11:4
We are tired of waiting! God is doing something amazing in our lives, in the lives of others. It's time for a change. We are ready for God to heal. We have been ready since day one but it's time. We give thanks to our God for what we are blessed with. For the time we have together, the roof over our head, food in our belly, our children, our families! So many things to be thankful for. We are ready to bring glory to God to give HIM all the credit for healing! Our prayer is that God will bless the Sutent (chemo) and use that as our miracle.
Josh hasn't had many side effects to the Sutent. He has c/o having a raw mouth. His taste is really off. He was saying how bitter an orange was. I thought that was odd and thought that maybe it was just a bad piece. So the next time I cut one up for him I tasted it. It was oh so very sweet and yummy. He said it was bitter with no flavor. :) He feels dizzy/lightheaded (feels like his balance is off) when he sits up on the side of the bed. It passes quickly though. Other then that I don't think he has had any other problems with the drug. He has however been more achy the last few days. Tonight he said his skin was starting to hurt. I laugh because so many times I have c/o my skin hurting and he just doesn't understand. Well now he does. I don't like all of this but I think one of the reasons it is happening is so that Josh will have a little bit of a better understanding of how I often feel. It IS just a small reason, I know there are many. He has good and not so good days. He is doing a good job at pushing himself to get out of bed EVERYDAY and to stay on top of his bowl care. Fun stuff.
I have started back to work. Just a little bit here and there. It feels good to get out and have a change of pace. Lately if I go anywhere it's usually to the grocery store. I know your so jealous! :) Don't you just wish you we're me???
We are tired of waiting! God is doing something amazing in our lives, in the lives of others. It's time for a change. We are ready for God to heal. We have been ready since day one but it's time. We give thanks to our God for what we are blessed with. For the time we have together, the roof over our head, food in our belly, our children, our families! So many things to be thankful for. We are ready to bring glory to God to give HIM all the credit for healing! Our prayer is that God will bless the Sutent (chemo) and use that as our miracle.
Josh hasn't had many side effects to the Sutent. He has c/o having a raw mouth. His taste is really off. He was saying how bitter an orange was. I thought that was odd and thought that maybe it was just a bad piece. So the next time I cut one up for him I tasted it. It was oh so very sweet and yummy. He said it was bitter with no flavor. :) He feels dizzy/lightheaded (feels like his balance is off) when he sits up on the side of the bed. It passes quickly though. Other then that I don't think he has had any other problems with the drug. He has however been more achy the last few days. Tonight he said his skin was starting to hurt. I laugh because so many times I have c/o my skin hurting and he just doesn't understand. Well now he does. I don't like all of this but I think one of the reasons it is happening is so that Josh will have a little bit of a better understanding of how I often feel. It IS just a small reason, I know there are many. He has good and not so good days. He is doing a good job at pushing himself to get out of bed EVERYDAY and to stay on top of his bowl care. Fun stuff.
I have started back to work. Just a little bit here and there. It feels good to get out and have a change of pace. Lately if I go anywhere it's usually to the grocery store. I know your so jealous! :) Don't you just wish you we're me???
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