Saturday, September 20, 2008




Well, I saw Dr. Balderson in Eugene on Monday. I now remember why I liked him. He is the same doctor we saw in Portland when I was first diagnosed. A very calm and understanding guy with a smile on his face. It is a relief talking with people that know about EDS and not trying to explain everything hoping you don't miss something. The nurse did a US shortly after we were there. I will admit it was nice looking at a monitor up on the wall in front of me instead of trying to turn my head to see the one next to me. :) Anyway everything looks good. Joshua is growing good, around 3/4 of a pound at that point. Yet I've gained 13lbs. HOORAY! (I am excited about it! ) The 3D pics are very cool. No fat on his bones yet, but soon. They measured EVERYTHING on him and it ALL looks perfect. So I was told. :) Dr. Balderson came in looked at the US and agreed that everything looks well. We talked with him about my fast heart rate and the shortness of breath. He wants to keep a close eye on things for now and wanted to see what the echo showed later that day. I spoke with his clinic yesterday and the echo came back normal so unless something changes or started going wrong within the next 6 1/2 weeks he wants to admit me at 28wks (first of Nov.) and deliver at 32wks. (first of Dec.) I am thankful that it isn't 6wks in the hospital, but it will still be difficult being in there for a month.

I've been off work for a week and a half and it's make me go CRAZY! I know it's for the best BUT I would much rather be at the clinic doing what I enjoy. When we came home from Eugene on Wednesday Andrew stayed and is enjoying time with papa, nana, and Auntie Jen. Therefore....this week I have gone through all of Andrew's 0-3mo baby clothes for Joshua. Washed, hung up and put them all away. I with cousin Elya and have been cleaning out closets! Today we went through all of Andrew's clothes and boxed up summer clothes and clothes that no longer fit the big guy. And then pulled out clothes for the next 6 months so dad doesn't have to worry about finding winter clothes and I can feel confident that my child is wearing clothes that fit him properly while I am not in control...ha ha ha (don't worry I am not doing too much or lifting things I shouldn't. Elya won't let me ) I am VERY thankful to those of you that have provided us with clothes for Andrew! We have been truly blessed and haven't HAD to buy him clothes over the last 2 1/2 years! And won't have to for awhile. So THANK YOU VERY MUCH!!

I am feeling pretty well. I get tried easily and winded with just a short walk up the stairs, but I am doing better then I thought I would be. Your prayers are so greatly appreciated. Keep praying that we stay in good health, that our pre-delivery stay at the hospital won't extend 4wks and that Andrew will be able to bond with daddy while this change is happening and be able to cope when our lives come back as one again.

No definite plans yet, but we are thinking that Andrew is going to stay with Josh during the week in Klamath and then they will drive up on the weekends....Andrew may stay a week here and a week there in Eugene but we will have to see how he is doing. Lots of prayers!

Tuesday, September 9, 2008

So today wasn't that great. Spent most of the day in the ER. It started about 2-3mos ago where I've been having these episodes of shortness of breath and where it feels like my heart is jumping out of my chest. Well at my last doctors apt with doctor Sohl I talked with him about it and he just wanted us to keep an eye on it and check my heart rate when it happens. It's happened a couple times over the last week and then again last night. I was just laying in bed, rolled over and my heart started racing. It went away pretty quick, which it usually does. WELL.....I had a regular OB check up this AM with my K. Falls doctor and gosh darn it it happened again. All I was doing was having a conversation with the nurse about my regular concerns and I started to get the shortness of breath and my heart was jumping....my BP was good but my heart rate was 144. My doctor came in and didn't like the way I looked....she called our cardiologist in town and she isn't familiar with EDS and suggested I go to the hospital. So that's where we went. Blood work, EKG, ultrasound of all my organs and baby, and a MRI of my aorta. Everything came out normal. Which IS good, but then why is this happening??? Right now the reasoning for my tight chest with shortness of breath is as usual...my uterus gets bigger puts more pressure on my lungs which in turn causes my symptoms. As for my heart, well I have and echo next Monday when I meet with Dr. Balderson and Kaatz in Eugene. We'll see what they have to say about all of this.
This week was suppose to be my last week of work, but after today my doctor said that I am done. That bummed me out I am not mentally ready to be done. BUT it's okay cause physically it's time! Lots of prayers are needed and are appreciated! I know that anything can happen to anyone of us, but I also know that GOD is good and he can do anything.