He is holding his legs up in the air.....Hooray!



Josh just got done with his second radiation appt. Every week day for 10 treatments. 2 down 8 to go. Things are moving right along. It still feels like we are waiting for something but not exactly sure what. It will probably feel that way until we are HOME! Which could be in a couple weeks. Maybe. There is a trial going on here at OHSU for treatment of ASPS (alveolar soft part sarcoma) if Josh decides he is going to participate then he has to wait three weeks between his last radiation tx and the start of the trial chemo. However we are waiting to see if he will be able to get into a rehab center to help get more strength in his legs. That may delay the trip home. Josh is still moving his legs more and more everyday. This week he started standing up in the hall way holding onto the railing. Just for 45 seconds or so but it's progress. I got to see him stand for the first time yesterday. He also held onto the rail with his right hand only and with help from the physical therapist he took four steps. It was very moving. Hard to watch but encouraging. He has up and down moments. I can't imagine how he feels not being able to just get up and walk across the room.

Joshuah is doing really well. Just at about 6lbs. Eating well and growing like a weed. He was released from the hospital on Sunday. It is very nice to have him with me. It feels weird having him around and not having to go back and forth to the hospital. I will admit it's nice not having to go back to that hospital all the time, BUT I do miss the staff. It felt like home longer then it should have. It still somewhat feels like home.

Andrew is still dealing with things like a champ. He enjoys playing with the girls (my sisters) and getting in the hot tub with papa. It is my little water baby. Swimming lessons when we get home! He has NO fear of the water. It was cute the other night, he was watching me feed Joshuah he picked up Joshuah's hand and said "look mom we're shaking hands. Good to