Wow how the days go by. I am going to make this as short and informational as I can before my brain goes dead and I loose what I am trying to say...

Josh started having some troubles with his breathing yesterday morning. Said it was hard to breath and feeling very tight like the fluid was building up again in the pleural area. So we went into ER for an x-ray and tap if needed. Wait let me rewind a little bit. Last Friday (a week ago) Josh was having these same feelings and we went to ER to be tapped. His doc drained about 800ccs out and it was causing a lot of pain and that is when he stopped. Josh went back this past Wednesday for another x-ray to confirm that there was in fact still fluid built up....Thursday he had another tap. Drained out about 2100ccs of bloody fluid. Back to yesterday. So we get to ER x-ray shows the fluid has built back up and his pulmonologist drained about 1600ccs off. Josh's blood work compared to blood work he had done last month showed a big change in a lot of different areas. Not good changes. Sodium low, potassium high, platelets low, Hgb low...it goes on and on. Well last Monday Josh started the new chemo that his oncologist has been talking about/ The change in blood values we hope are from that medication. He did not take that chemo yesterday and started back up on his Sutent last night. They changed him because his onc. doesn't feel like the Sutent (current chemo) is working anymore. But we'll see. Sooooooo more blood work was done last night after he had two units of blood. Most of the values came up. Including his potassium. Not good. They gave him something to help that value go down. This mornings values show that it did come back down a little bit. The others were still crazy, and today he received two more units of blood. The fluid is building up faster then it had been. Josh hasn't felt much relief for very long that is from the last tap. He may get tapped tomorrow or Tuesday. For now he is resting at the hospital with fluids and blood as needed. Because his platelets are so low (44,000) His incision site from yesterdays tap kept bleeding throughout the night. The nurses got it to stop this afternoon....
What now. Sorry I feel like I am all over the place. That is what happens when you don't blog as often as you should. So. Josh has a choice. Either he goes to the hospital every 2-3 days for a tap and then it could turn into every day or every other day.... OR the pulmonologist can put in a chest tube (been there done that. OWIE) and that will be a permanent drain. Not sure what Josh is going to do. As of right this minute he wants to just be tapped. Tomorrow though he said he would think about it and make a decision. Pray for wisdom. On a better note. His pain has been pretty well under control. He often skips a dose of his morphine on purpose. That is a answer to prayer!
Andrew is coughing crazy and jumping up and down asking for medicine....yet he already got it. It is now an hour past bedtime. Both of the boys have had bad coughs this week and just when I though Joshuah was getting better he sounds worse to day. Pray for their health.
Hooray we are getting a new bathtub for Josh! Our bathroom has been gutted (almost) for a week now. Andrew has enjoyed showers and Joshy likes his baths in the kitchen sink. Showers with brother seem to end in tears. Joshy is walking almost running all over the place. Says, Hi, up, out, ohhhh wow, and others. Very cute to see him grow and develop. Andrew will be 4 on the 18th. I can't believe how fast time is going. I have made it my goal for tomorrow to call and get him in gymnastics. I've been saying for months I am going to do it never have. Tonight when I picked him up from Auntie Sharla's he was hanging with his feet up on the "oh shoot" handle above his booster seat....when we got home he was swinging on Josh's trapeze bar like he was ready for the Olympics. :) I promise I will keep you updated as this week goes on. Love to all!
Being carried!